• Kleefstra syndrome Conference, 14th - 16th August 2015 - Hotel Novotel, Coventry, UK.

We are once again holding a UK Kleefstra Meet/Conference at the Hotel Novotel, Coventry, UK.  While we are only in the early stages of planning the event we expect it to be even more popular than the one in 2013 and we are fortunate to have Dr. Kleefstra attending once again.  Other confirmed guest speakers include Professor Chris Oliver who works in the field of Neurodevelopmental Disorders and is the Director of the Cerebra Centre for Neurodevelopmental disorders.  We also have Cindy Jo-Morison who specialises in Music Therapy and is Music Therapy advisor to Rett UK.

To book your room(s) or place on the conference please contact Sheila 024 7636 5000 at the Novotel and ask to book a room for the Kleefstra syndrome Conference in August, we have reserved 10 rooms for Friday 14th, 20 rooms for Saturday 15th and 5 Rooms for Sunday 16th.

The main Conference will take place on Saturday 15th, we anticipate this to be a full day's session.

Friday 14th August 2015

  • Bed & Breakfast, per double/family room £65.
  • Adult evening meal £10, Child evening meal £7.


Saturday 15th August 2015

  • Conference package rate of £120 per double room Bed and Breakfast, including morning/afternoon coffee breaks, buffet lunch and adult evening meal.  Child lunch additional £6, Child evening mean additional £7
  • Complimentary use of Conference and Creche Suites.


Sunday 16th August 2015

  • Bed & Breakfast, per double/family room £65
  • Complimentary use of Conference Suite (Morning only)
  • Afternoon trip to Hatton World (Entry price tbc.)
  • Adult evening meal £10, Child evening meal £7


  • UK Meet 2013 Report


Sorry it took so long, but here are promised is a brief report of the UK Meet 2013.  Please click to view or download it.



  • Kleefstra syndrome UK Meet 2013


We are holding a UK Kleefstra Meet/Conference once again at the Hotel Novotel, Conventry, UK.  This years event promises to be popular as we are fortunate enough to have Dr. T. Kleeftsra attending with two of her collegues. 

For more information or to book your place please download the attached information sheet or contact me directly.pdf 25x25


  • Kleefstra syndrome USA meet information update





  • Kleefstra syndrome USA meet, Texas, October 2012

morgansA member of our website is organising a meet up for fellow families whom have a child with Kleefstra syndrome.  The meet is to take place in San Antonio, Texas (USA) during the second week in October 2012.  San Antonio has been chosen as it's home to Morgan's Wonderland which is a theme/amusement park specifically designed for special needs children.  Discount accomodation is going to be arranged once numbers are known and a block booking with the hotel can be made.  If you are interested in attending this meet please let us know using the contact us form and we'll pass your details on to the person organising the event.


  • Kleefstra syndrome UK meet 2011

Following on from the success of the Unique Kleefstra syndrome conference held in April 2010, we are organising a less formal get together of the Kleefstra families this year. The event will be taking place once again at the Novotel Hotel in Coventry during the weekend of 13th and 14th August 2011. We intend to arrange a day trip to a local park which has been recommended by a number of people.

The rates for the hotel are £85 for a double room, this includes dinner and breakfast, however the hotel has asked that we contribute £6 for each child for their evening meal.  It will be £67 for a single room which again would include dinner and breakfast too.

There is a good chance that families will be able to apply for funding for the weekend too, so please do not let the cost put you off.  If this is applicable, the following charities may be able to offer help:

Family Fund –

Happy days childrens charity -

Cauldwell Children -

If you are interested in attending or would like any further information, please contact Fiona Heslehurst by email at This email address is being protected from spambots. You need JavaScript enabled to view it.


  • Unique and Jeans for Genes study day April 2010

The first day of it's kind dedicated to Kleefstra syndrome, Unique and Jeans for Genes are planning the event for families with a family member diagnosed with Kleefstra syndrome. The day is currently scheduled for 16-18th April 2010.

Unique carried out a majority convenience vote and it has now been decided that the location will be in the Midlands of the UK. If you wish to know more or want to attend please visit Unique's website and sign up to be a member. Please note you do not need to be from the UK to attend.

Tjitske Kleefstra from Nijmegan's University of Medicine, The Netherlands is scheduled to attend the day.


Additional information