Past Events
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Beaulieu – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ... -
Eureka! – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ... -
Conference 2018
On the weekend of 10th-12th August 2018 we held our third family conference and social gathering. The weekend was a huge success with 42 families from ... -
Awareness Day 2018
September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ... -
Awareness Day 2017
September 17th Kleefstra syndrome Awareness Day Kleefstra Syndrome awareness day is celebrated throughout the Ks community on 17th September. This is because the majority of Ks ... -
UK Social Meet 2016
The weekend of 17th/18th September saw an informal get together of Kleefstra families in Bournemouth, UK. The weekend provided a great opportunity meet, catch up with ... -
KS Conference 2015 Summary
In August 2015 we hosted our second conference in Coventry, UK. Once again we were fully booked with 37 families attending from around the world to learn ... -
KS Conference 2013
After the successful Kleefstra study weekend organised by Unique back in 2010, on the weekend of 9th-11th August 2013 we held our first Ks Conference here ... -
Unique Study Weekend 2010
In April 2010 Unique hosted a weekend event for families of children with Ks. The weekend provided a rare opportunity for parents to get together, to ...
