Kleefstra syndrome

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Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • GENIDA Digital Registry
    • Resources
    • Useful Links
    • Call-back Service
  • Awareness
    • KS Awareness Day
    • Downloads
  • Events
    • Future Events
    • Past Events
  • Sign Up
  • About Us
    • Meet the Team
    • Mission Statement
    • Support Us
    • Easyfundraising
    • Partners
    • Contact Us
    • Our Policies

Past Events

Home›Category: "Past Events"
  • Past Events
    By mousem
    28th August 2018
    2044
    0

    Conference 2018

    On the weekend of 10th-12th August 2018 we held our third family conference and social gathering.  The weekend was a huge success with 42 families from ...
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  • Kleefstra syndrome Awareness day 2017 social icon (Post width)
    Past Events
    By mousem
    11th May 2017
    6126
    0

    Awareness Day 2017

    September 17th Kleefstra syndrome Awareness Day Kleefstra Syndrome awareness day is celebrated throughout the Ks community on 17th September. This is because the majority of Ks ...
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  • Past Events
    By mousem
    11th July 2016
    489
    0

    UK Social Meet 2016

    The weekend of 17th/18th September saw an informal get together of Kleefstra families in Bournemouth, UK.  The weekend provided a great opportunity meet, catch up with ...
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  • Kleefstra syndrome Conference 2015
    Past EventsResources
    By mousem
    10th January 2016
    628
    0

    KS Conference 2015 Summary

    In August 2015 we hosted our second conference in Coventry, UK.  Once again we were fully booked with 37 families attending from around the world to learn ...
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  • 2013 Kleefstra conference Report
    Past EventsResources
    By mousem
    15th May 2013
    518
    0

    KS Conference 2013

    After the successful Kleefstra study weekend organised by Unique back in 2010, on the weekend of 9th-11th August 2013 we held our first Ks Conference here ...
    Read More
  • Unique Study Weekend 2010
    Past EventsResources
    By mousem
    20th July 2010
    438
    0

    Unique Study Weekend 2010

    In April 2010 Unique hosted a weekend event for families of children with Ks.  The weekend provided a rare opportunity for parents to get together, to ...
    Read More

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