Past Events
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It Takes a Village Singing Hands session
For the next “It Takes a Village” event, we welcome Singing Hands. Join us on Sunday 8th May at 4:30pm for a live multisensory session. Be ... -
Virtual Yoga Class
Join KleefstraSyndrome.org for a virtual yoga class! We have the privilege of hosting the talented Sarah Raspin, who specialises in yoga for children and young adults ... -
Kleefstrasyndrome.org Virtual Coffee Afternoon
Saturday 12th March 2022, 4pm GMT Come and join us on Saturday 12th March for our virtual coffee afternoon (which will be run from the UK) ... -
It Takes a Village – Life with Kleefstra Syndrome
Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time). This event will feature Julie Goff, ... -
It Takes a Village Music Therapy session
Our next event in ‘It Takes a Village’, is a Music Therapy session set up for Saturday 11th September at 4pm GMT, with Cindy Jo Morison, ... -
An Introduction to Sensory Processing Differences Zoom Session
It Takes A Village is a new program of useful, interesting, and fun events for families, carers and children diagnosed with Kleefstra Syndrome and other rare ... -
Awareness Day 2021
September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ... -
Beaulieu – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ... -
Eureka! – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ... -
Conference 2018
On the weekend of 10th-12th August 2018 we held our third family conference and social gathering. The weekend was a huge success with 42 families from ...
