Anna is mum to Hunter (11) and Hazel (7). Hunter was diagnosed with Kleefstra Syndrome at just 4 weeks old after being born with a congenital heart defect, which prompted early genetic testing. The first year was challenging and overwhelming, but connecting with other families who had gone through similar experiences provided invaluable support, understanding, and reassurance.

Six years later, Anna is passionate about giving back. She is excited to be involved with the charity, helping other parents navigate the complexities of life with Kleefstra Syndrome, offering guidance, practical advice, and emotional support, and showing families that “they will be fine,” because they truly can be.

KS Experience

Mum to Hunter (11) who was diagnosed with Kleefstra Syndrome at just 4 weeks old

Volunteer Work

In addition to her time with KSUK, Anna regularly supports a small charity locally that has a pop-up supermarket and she helps them with their admin.