Awareness Day 2017
Kleefstra syndrome Awareness Day
Kleefstra Syndrome awareness day is celebrated throughout the Ks community on 17th September. This is because the majority of Ks individuals have a deletion on chromosome 9 at 9q34.3. The 9th month of the year is September and the 17th letter of the alphabet is Q.
In previous years families have raised awareness of Ks by having t-shirts made for their families and friends and a Ks cakes too.
What can you do for Awareness Day?
- Update your social media profiles
We would like to invite the Ks community to join together and change their profile picture/cover picture to the Ks awareness day badge. We hope this will create a buzz on Facebook which will help to spread awareness of this rare syndrome. To get the badge click the image above to open. Then use ‘right click > save image’ as to save a copy.
- Buy and wear your Ks Wristbands
We have Ks wristbands available to purchase (all proceeds towards the UK conferences and events). The bands are a fantastic way of raising awareness. Ks wristbands are just £1 each and can be purchased here.
- #ShareYourSelfie and share the #Kleefstralove!
This year we have designed a number of selfie templates which can be downloaded and printed. The templates include a starting statement with space for families to write personal messages on. Take a photo of yourself or your family members holding the completed sheet and post it on Facebook, Twitter or Instagram using the hashtags #KSAD16 #KleefstraProud. We hope that you will enjoy taking part in this fun way to raise awareness and if you can please encourage family and friends to join in too.
- Keep liking us!
Please encourage family and friends to like our Facebook page and follow us on Twitter to keep to date with events, important information and Ks developments.