The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered ...

Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check ...

We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK ...

Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to ...

Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our ...

Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During ...

‘BEOND’ is a pioneering study with our partners at the Cerebra Network for Neurodevelopmental Disorders, which aims to understand more about behaviour, wellbeing, emotion, ...

Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work The Kleefstra Syndrome Scientific Conference 2023, organised by iDefine ...

Little is known about sleep patterns observed in individuals with Kleefstra syndrome, but we know from listening to the community that sleep has a ...

Research into speech and language skills in individuals with Kleefstra syndrome: an international study Murdoch Children’s Research Institute are running a project looking at ...