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The Sandcastle Trust: Support for Families Living with Rare Genetic Conditions
We were recently contacted by The Sandcastle Trust, highlighting the services they can provide to rare families just like us! Their mission is to ...Stocking fillers from Kleefstra Syndrome UK
Looking for the perfect stocking filler? Spread some Christmas cheer and support a great cause with our Kleefstra Syndrome UK branded gifts! What branded ...Kleefstra Christmas Chat – Virtual Get Together
Saturday 9th November, 6pm – 7pm (GMT) Let’s get prepared for Christmas and come together with other Kleefstra families to talk all things Christmas. ...Are you on the map?
We’re thrilled to share that the global Kleefstra Syndrome map is now available in multiple languages, thanks to the incredible work of Haluk, a ...Fundraising opportunity with Easyfundraising
We’re excited to announce a special offer with Easyfundraising! You can support Kleefstra Syndrome UK every time you shop online – at no extra ...Summary on recent publications on Kleefstra Syndrome – August 2024
Background information about genetics A person’s genotype is their unique sequence of DNA. More specifically, this term is used to refer to the two ...Kleefstra Syndrome UK Family Conference 2024
The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered ...Kleefstra Syndrome UK Merchandise Available Now
Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check ...Kleefstra Syndrome UK is now a Registered Charity
We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK ...Take part in research: The Checklist Project
Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to ...
