Kleefstra syndrome

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Kleefstra syndrome

  • About Kleefstra Syndrome
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Support

Home›Front Page›Category: "Support" (Page 2)
  • Kleefstra Syndrome UK Conference 2024
    All EventsNews and ResourcesUK Conferences

    Kleefstra Syndrome UK Family Conference 2024

    By mousem
    7 August 2024
    The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered ...
    Read More
  • News and Resources

    Kleefstra Syndrome UK Merchandise Available Now

    By mousem
    26 June 2024
    Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check ...
    Read More
  • Kleefstra Syndrome UK is a Registered Charity
    News and Resources

    Kleefstra Syndrome UK is now a Registered Charity

    By mousem
    8 May 2024
    We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK ...
    Read More
  • Active Research & Studies

    Take part in research: The Checklist Project

    By mousem
    11 March 2024
    Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to ...
    Read More
  • Kleefstra Syndrome UK - Stronger Together
    All Events

    Stronger Together Kleefstra Syndrome UK Family Conference 2024 – Prices Reduced!

    By mousem
    3 March 2024
    On Sale! The Stronger Together Kleefstra Syndrome UK Family Conference, is being held at the Wychwood Park Hotel Cheshire on 12th – 14th July ...
    Read More
  • Murdoch Children's Research Institute - Speech Research
    KS Research & StudiesNews and Resources

    Kleefstra syndrome: speech and language study published!

    By mousem
    20 February 2024
    The Kleefstra syndrome speech and language study Expanding the phenotyping of Kleefstra syndrome: speech, language and cognition in 103 individuals has been published in ...
    Read More
  • News and Resources

    Vacant position – IT/web manager

    By mousem
    29 November 2023
    Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our ...
    Read More
  • Kleefstra Syndrome UK Logo
    News and Resources

    Kleefstra Syndrome UK unveils new identity in line with new charity status

    By mousem
    14 November 2023
    Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During ...
    Read More
  • Twycross Zoo Visit
    All Events

    Midlands Family Gathering

    By mousem
    9 September 2023
    You are warmly invited to a Midlands family gathering at Twycross Zoo in Tamworth, Leicestershire, on Sunday, September 24th, starting at 10:00 AM. This ...
    Read More
  • Tank museum visit
    All Events

    September meet-up in the South

    By mousem
    9 August 2023
    ***UPDATE: This event is postponed due to low attendance levels and exhibition closures at the museum – we are looking to rearrange the meet-up ...
    Read More
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