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Supporting Speech and Language Development in Kleefstra Syndrome
Join us on Saturday 1st October at 4pm (BST) for an informative webinar and discussion on speech and language development. We have arranged for ...Parent Power Zoom – 6th August
***Missed it? Catch the recording of the session here! *** Passcode: +P6H0N!D Join us on Saturday 6th August at 4pm, for ‘Parent ...Virtual Resilience and Wellbeing Session
Tuesday 19th July, 7 – 8:30pm Hosted via Zoom Join Kleefstrasyndrome.org for the next in our “It Takes a Village” series for a ...Congratulations and thank you to John and Mike for their extremely generous donation!
Kleefstra Syndrome recently received its largest ever single donation. John and Mike, a couple who had been living together for many years, finally decided ...The South Social Summer Meetup – 6th August
Bookings are now open for our KS families social gathering for families in the South of England and the surrounding areas! The gathering will ...The Impact of Rare Genetic Disorders on Family Functioning
Karlijn Vermeulen (Pediatric psychiatrist and clinical researcher at Radboud UMC in Nijmegen) recently published an article about the enhanced levels of stress that parents ...It Takes a Village Singing Hands session
For the next “It Takes a Village” event, we welcome Singing Hands. Join us on Sunday 8th May at 4:30pm for a live multisensory ...Virtual Yoga Class
Join KleefstraSyndrome.org for a virtual yoga class! We have the privilege of hosting the talented Sarah Raspin, who specialises in yoga for children and ...Kleefstrasyndrome.org Virtual Coffee Afternoon
Saturday 12th March 2022, 4pm GMT Come and join us on Saturday 12th March for our virtual coffee afternoon (which will be run from ...It Takes a Village – Life with Kleefstra Syndrome
Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time). This event will feature ...
