Sleep study on Kleefstra Syndrome
Little is known about sleep patterns observed in individuals with Kleefstra syndrome, but we know from listening to the community that sleep has a significant impact on quality of life for both our loved ones and our parent/carer community. The goal of this research is to map-out sleep patterns in individuals with Kleefstra syndrome. With this information, we expect that, in the future, we can perform more in depth studies on the sleep aspects and help people with Kleefstra syndrome who have sleep problems.
To take part:
Everyone with KS from three years and up is welcome to participate, including people without a history of sleep problems. If interested, email firstname.lastname@example.org. The survey will be opened in January and participation will be open until the end of March 2023.