News and Resources
Kleefstra Syndrome UK Family Conference 2024
The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered a unique ...Kleefstra Syndrome UK Merchandise Available Now
Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check out our ...Kleefstra Syndrome UK is now a Registered Charity
We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK Charity Commission! ...Vacant position – IT/web manager
Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our small charity, ...Kleefstra Syndrome UK unveils new identity in line with new charity status
Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During our Annual ...Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) and Kleefstra Syndrome – Take Part Now!
‘BEOND’ is a pioneering study with our partners at the Cerebra Network for Neurodevelopmental Disorders, which aims to understand more about behaviour, wellbeing, emotion, cognition, sleep ...Kleefstra Syndrome Scientific Conference 2023
Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work The Kleefstra Syndrome Scientific Conference 2023, organised by iDefine Europe, will ...Sleep study on Kleefstra Syndrome
Little is known about sleep patterns observed in individuals with Kleefstra syndrome, but we know from listening to the community that sleep has a significant impact ...Speech and Language study
Research into speech and language skills in individuals with Kleefstra syndrome: an international study Murdoch Children’s Research Institute are running a project looking at speech & ...Congratulations and thank you to John and Mike for their extremely generous donation!
Kleefstra Syndrome recently received its largest ever single donation. John and Mike, a couple who had been living together for many years, finally decided to tie ...
