We’re thrilled to share that the global Kleefstra Syndrome map is now available in multiple languages, thanks to the incredible work of Haluk, a dedicated parent from Turkey! Thank you, Haluk, for making this possible.

The map now features 775 families from around the world, but we believe there are many more to connect with! Let’s aim for 1,000 families to show that Kleefstra Syndrome is not as rare as it seems. Every new family strengthens our community and makes the map even more impactful.

This map is vital not only for raising awareness but also for helping us better understand the prevalence of Kleefstra Syndrome. It connects us as a global community and could play a key role in future clinical studies by helping clinicians find the best locations for trials and recruit families.

Check out the updated map and join us here: Kleefstra Syndrome Worldwide Map (kleefstraworldmap.org)