The Impact of Rare Genetic Disorders on Family Functioning
Karlijn Vermeulen
Karlijn Vermeulen (Pediatric psychiatrist and clinical researcher at Radboud UMC in Nijmegen) recently published an article about the enhanced levels of stress that parents with a child with Kleefstra syndrome and other genetic disorders experience. It’s called ‘The Impact of Rare Genetic Disorders on Family Functioning‘ and just under half the subjects were affected by Kleefstra syndrome; an interesting read for parents of those with the syndrome.