On Sale!

The Stronger Together Kleefstra Syndrome UK Family Conference, is being held at the Wychwood Park Hotel Cheshire on 12th – 14th July 2024. Book your conference attendance NOW at a reduced price.

The Trustees are very pleased to announce that we can now subsidise the delegate costs further, enabling a substantial reduction to the cost for families to attend the Conference. This price is guaranteed until registration closes on 12th June 2024, or earlier if we meet conference capacity.

REVISED Conference attendance costs:

KS children and KS adults attend the conference FREE of charge.

The adults Day Delegate rate has now reduced to; £20 each which includes unlimited refreshments, and a 3 course, hot and cold buffet lunch.

Siblings/children’s rates which also includes unlimited refreshments, and a 3 course, hot and cold buffet lunch are;

• Children over 15, £12.00,
• Children aged 4 – 14, £ 8.00
• 3 and under FREE

Parents have the option to bring a packed lunch for their child/children if they prefer, the children’s rate above can be reduced further if you choose this option at the time of booking.

Supervised Activity Area (Limited numbers)

• KS children and KS adults FREE
• Siblings £5 each

Pre-booking is required. Please indicate which sessions, am or pm, your child will be attending, as this helps to plan the staffing levels. The aim is to have a main activity room, with crafting and other activities, a quieter room with a TV and films/programs, and a soft playroom, so that they can have fun and burn off a bit of energy.

Please remember that your accommodation, if required, needs to be booked separately with the hotel.

The venue for the conference is:
Wychwood Park Hotel
Weston,
Crewe,
CW2 5GP

To book your hotel stay, please telephone the hotel reception, option 5, Telephone Number: 01270 820 000 stating that you wish to book for the Kleefstra Syndrome Family conference, they will then be able to access the reserved rooms. The reception is open 24 hours.
Bedrooms per night: (Some bedroom options have already been taken.)
Standard double/ twin @ £129.00 (+£10 for added Z Beds*)
Accessible room double/twin @ 129.00 (+£10 for added Z Beds*)
Junior Suite (sleeps up to 4) @ £229.00
Weston Suite (sleeps up to 4) @ £279.00
*Limited Z beds available.

There are other hotels close by; 2 x Travelodges and a Premier Inn which may have other room options available.

You can also see additional/original information about the conference below! (though refer to the current page for pricing information)

Exciting news! We are thrilled to announce the upcoming UK Kleefstra Syndrome Family Conference on Saturday, 13th July 2024. Six years have passed since our last conference, and we can’t wait to gather our extended Kleefstra family once again.

Kleefstra Syndrome is so rare; individuals with Kleefstra may go years – or even a lifetime – without meeting another person like them! Imagine stepping into a room full of people who can relate to what you and your family are going through every day, where you’re fully supported and understood, where you can mingle with some experts and make lifelong friends. It’s a priceless life-changing experience that you won’t want to miss!

The Family Conference is tailored just for you, therapy professionals, researchers, and individuals who understand Kleefstra syndrome will be there to share their knowledge. Heading our conference will be Professor Kleefstra herself. To ensure you can focus on the insightful sessions, we are providing a dedicated activity area with trained staff to ensure your KS child is happy and engaged.

Who is invited? Everyone! Grandparents, friends, family — anyone in a Kleefstra family eager to learn more about the syndrome and connect with other KS families.

Please mark your calendars, as we genuinely look forward to your presence. The conference venue is in Cheshire, on the border of Stoke on Trent, further details of the conference agenda and pricing will be shared soon.

Please complete the form to book and secure your spaces:  https://form.jotform.com/240043200677042

If you have specific questions about the event, please email info@kleefstrasyndrome.org.

Save the date, and let’s make this Family Conference an unforgettable experience for our growing Kleefstra community!