Registration is Now Live – KS UK Conference 2026

We’re delighted to announce that booking for the Kleefstra Syndrome UK Family Conference 2026 is now OPEN!

Saturday 4th July 2026
Wychwood Park Hotel, near Crewe

After such a special and successful conference in 2024, we can’t wait to bring our community back together again for another inspiring, supportive and hope-filled weekend.

How to Book

To access the booking page, please use the password below:

Password: KS2026

Access the booking site by clicking HERE!

If you have any difficulties accessing the booking page, please contact us at info@kleefstrasyndrome.org and we’ll be happy to help.

What to Expect – UPDATED

This special event brings together families and individuals affected by Kleefstra Syndrome, carers, healthcare professionals, researchers, and supporters from across the UK and beyond.

Whether you have a family member who is newly diagnosed or have been part of the KS community for years, the conference is a chance to connect, learn, and feel supported… together.

Our 2026 conference programme is now confirmed and has been carefully designed to offer a balance of expert insight, practical support and real-life experiences, alongside plenty of time to connect with others.

You can expect:

• Expert speakers sharing insight into key topics including mental health and regression, behaviour, gastrointestinal health and occupational therapy
• Practical guidance on navigating the EHCP pathway and understanding what’s changing for families
• Breakout sessions covering areas such as sleep, speech and language, and support through teenage and adult years
• Opportunities to hear directly from families, sharing honest experiences across different life stages
• Q&A panels with professionals, giving you the chance to ask questions and explore topics further
• A supervised activity area for children and young people throughout the day
• Regular breaks and social time to connect with other families in a relaxed and supportive environment

The conference begins with an optional pre-event social evening on Friday, followed by a full day programme on Saturday and the opportunity to continue conversations informally on Sunday morning.

Fundraise for your Conference Place!

We’re all feeling the squeeze at the moment so one way to make sure you don’t miss out on next year’s Conference could be to fundraise for you and your family to come along. Take a look at our new fundraising pages for some ideas and inspiration!

What are you waiting for?

We’d love to see as many KS families and supporters as possible at conference this year. Head over to our new booking site TODAY to secure your place!

2026 Family Conference COUNTDOWN

In the meantime, if you have any questions or suggestions, feel free to contact us at info@kleefstrasyndrome.org