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4th October 2026 – Family Get-Together
Families Come Together in Sheffield for a Special KSUK Gathering On Saturday 4th October, families from across the country came together in Sheffield ...In Loving Memory of Mr Solomon
In Loving Memory of Mr Sylvester Solomon We are deeply saddened by the passing of Mr Sylvester Solomon, a much-loved father, father-in-law, grandfather, and ...Fundraising for Kleefstra Syndrome UK
Fundraising for Kleefstra Syndrome UK Fundraising is at the heart of everything we do at Kleefstra Syndrome UK. As a small, parent and friend-led ...The Sandcastle Trust: Support for Families Living with Rare Genetic Conditions
We were recently contacted by The Sandcastle Trust, highlighting the services they can provide to rare families just like us! Their mission is to ...

