
Courtney Helliwell
Trustee

Courtney is a Local Authority Special Educational Needs and Disability (SEND) Team Leader. She manages a team handling the Education Health and Care Plans (EHCP) in all settings; mainstream, enhanced resource and specialist, across our authority from nursery to year 11.
However, her most important role is being mum to Florence and Evelyn. Flo was born in 2023 and received her Kleefstra Syndrome diagnosis at four weeks old. Courtney and her husband have learnt Makaton and Flo is able to communicate using this.
Courtney attended the Midlands meet up at Twycross Zoo and spoke to Wendy about the 2024 Family Conference. This led to her speaking at the conference and joining the charity as trustee. She is delighted to be able to combine her professional and personal experience to support other KS families as they navigate the SEND and EHCP pathway.
Experience
SEND Officer, drafting and amending EHC plans; Makaton level 4; Teaching assistant in a special school
KS Experience
Mum to Florence who was diagnosed with Kleefstra Syndrome at just 4 weeks old.