Kleefstra syndrome

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Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Call-back Service
    • Published KS Research & Studies
    • Resources
    • GENIDA Digital Registry
    • Useful Links
  • Awareness
    • Awareness Day
    • Downloads
  • Events
    • Future Events
    • Past Events
  • Sign Up
  • About Us
    • Meet the Team
    • Mission Statement
    • Support Us
    • Easyfundraising
    • Partners
    • Contact Us
    • Our Policies
Resources
Home›Resources›Facebook Groups

Facebook Groups

By mousem
19th January 2020
0
0

Please find a list of known Facebook groups below.

None of these groups were created nor managed by Kleefstrasyndrome.org and we cannot be held responsible for their content.

(PRIVATE) Worldwide group for PARENTS of individuals with KS

(PRIVATE) UK group for PARENTS of individuals with KS

(PRIVATE) Worldwide group for family members and carers of individuals diagnosed with EHMT1 MUTATION

(PRIVATE) French speaking group for PARENTS of individuals with KS

(PRIVATE) Worldwide group for families who include someone 15 or older with KS

(PRIVATE) Italian speaking group for those with an interest in KS

(PRIVATE) German speaking group for those with an interest in KS

(PRIVATE) Brazil group for those with an interest in KS

(PRIVATE) Spanish speaking group for PARENTS of individuals with KS

(OPEN) Worldwide group for anyone with an interest in KS

 

 

 

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