Fundraise your way to the Family Conference in 2026!

Want to join us in July 2026 at the Kleefstra Syndrome UK Family Conference but worried about the cost?

How could it work?

1. Set a fundraising goal
   Decide how much you need to raise in order for you and your family to attend. You can include things like train tickets, hotel stay accommodation and the conference tickets (although we hope we can subsidise these – more on this in the coming weeks and months).
2. Pick your fundraiser initiative
   It could be something big or small — every effort helps:
   • A sponsored walk, silence or haircut?
   • A bake sale or coffee morning?
   • A quiz night, raffle or car boot sale?
   • Or anything creative that fits you and your family!
3. Create a fundraising page
   You can set up a page on a fundraising platform and link it directly to Kleefstra Syndrome UK.
4. Spread the word
   Use our fundraising toolkit (which includes things like social media templates, press release, and printable donation box template) to tell your friends, family, and local community what you’re doing and why.
5. Let us know. Of course!

We’d love to support and share your efforts. Email us at info@kleefstrasyndrome.org.uk once your fundraiser is up and running.

Need More Help?

If you have any questions or need further assistance with your fundraising campaign, don’t hesitate to reach out to our team. We’re here to help!

Every fundraiser helps us reach more families and grow our community. Thank you for being part of Team Kleefstra.