Wendy’s first grandchild, William, was diagnosed with Kleefstra Syndrome in 2014, just after his first birthday. William’s parents, Paul and Emma, as they found the information and support from the charity invaluable. They attended the 2015 and 2018 conferences and spoke to Dr Kleefstra. They enjoyed the opportunities to meet other children and families in the same position as them and told Wendy all about it.

Wendy has Chief Executive experience in managing charities, supporting people in need, such as homeless people and vulnerable families. When she found by chance that the founder members, Chris and Fiona, were stepping back from their chair and trustee roles she immediately expressed an interest in supporting the charity. She aims to use her connections and knowledge to ensure the families have access to relevant information, helpful support links, the latest medical updates, and opportunities to meet other families with children and young people diagnosed with Kleefstra syndrome. In this way she will employ her expertise and passion for supporting families to continue the fantastic work that Chris and Fiona started.

Experience

Charity management, housing and homelessness support; managing a local Home-Start providing parenting advice and family support to parents with young children in Newcastle under Lyme.

KS Experience

Wendy’s grandson William is her eldest grandchild and has KS. She has developed a wonderful relationship with him, he is a delight, with a great sense of humour.