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Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
    • Facial Phenotypes
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  • Support
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      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
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Author: hb-ks-admin

Home›Author: hb-ks-admin
  • Awareness Days
    All Events
    By hb-ks-admin
    8th September 2025
    12403
    0

    Awareness Day 2025

    Kleefstra Syndrome Awareness Day Every year on 17th September, the global Kleefstra Syndrome (KS) community comes together to raise awareness, share stories, and celebrate our amazing ...
    Read More
  • Donate
    Uncategorized
    By hb-ks-admin
    14th July 2025
    679
    0

    Donate

    Make a Donation Every donation helps make life a little easier for families living with Kleefstra Syndrome. We’re a small, but determined charity working to support ...
    Read More
  • All EventsNews and ResourcesUK Conferences
    By hb-ks-admin
    7th July 2025
    659
    0

    Kleefstra Syndrome UK Family Conference 2026

    Join Us for an Inspiring and Supportive Weekend – 4th July 2026 We’re excited to announce that our next Kleefstra Syndrome UK Conference will take place ...
    Read More
  • Piggybank
    Front Page
    By hb-ks-admin
    4th July 2025
    170
    0

    Fundraising For Conference 2026

    Fundraise your way to the Family Conference in 2026! Want to join us in July 2026 at the Kleefstra Syndrome UK Family Conference but worried about ...
    Read More
  • Online Fundraising Toolkit
    Awareness
    By hb-ks-admin
    4th July 2025
    137
    0

    Fundraising Toolkit

    Empowering your Fundraising Efforts Welcome to the Kleefstra Syndrome Online Fundraising Toolkit! Whether you’re hosting a cake sale, running a park run, or raising awareness online, ...
    Read More
  • Uncategorized
    By hb-ks-admin
    4th July 2025
    657
    0

    Fundraising for Kleefstra Syndrome UK

    Fundraising for Kleefstra Syndrome UK Fundraising is at the heart of everything we do at Kleefstra Syndrome UK. As a small, parent and friend-led charity, we ...
    Read More
  • Awareness
    By hb-ks-admin
    1st May 2025
    98
    0

    Fundraising Hints and Tips

    Fundraising Tips from Kleefstra Syndrome UK Getting started with donationsThe earlier you begin your fundraising, the more time you’ll have to reach – and hopefully exceed ...
    Read More
  • Awareness
    By hb-ks-admin
    1st May 2025
    114
    0

    Fundraising Ideas

    Here’s some ideas to get you started! Whether you’re fundraising solo, with friends and family, in the workplace or at school, there are so many fun ...
    Read More

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