Kleefstra syndrome

Top Menu

  • 2024 Conference Form
  • About Dr. Kleefstra
  • Anna Gibbs
  • Barbara Roberts
  • Basket
  • Call-back Service
  • Cerebra Pilot Study
  • Checkout
  • Conference 2018 Reserve list request
  • Contact Us
  • Courtney Helliwell
  • Download Zone
  • Downloads
  • Facial Phenotypes
  • Future Events
  • GENIDA Digital Registry
  • Guidelines for Kleefstra Syndrome (2026)
  • Hannah Banfield
  • Home
  • Kate Palmer
  • Kleefstra syndrome and KMT2C
  • Living with Kleefstra syndrome
  • Meet the Team
  • Mission Statement
  • My account
  • Order Confirmation
  • Our Latest News
  • Our NEW! Blog
  • Our Policies
    • Advertising Policy
    • Funding Sources
    • Medical Policy
    • Privacy Policy
    • Terms & Conditions
  • Partners
  • Past Events
  • Research Hub
  • Resources
  • Shop
  • Sign up
  • Sleep Problems and Regression
  • Support Us
  • Thank you!
  • USA Donation
  • Useful Links
  • Virtual Makaton Feedback Form
  • Virtual Makaton Session Booking Form
  • Virtual Music Therapy Session
  • Virtual Music Therapy Session Feedback
  • Vito Berzanskis
  • Wendy Hocking
  • What is Kleefstra syndrome?

Main Menu

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
      • Guidelines for Kleefstra Syndrome (2026)
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • Latest News
    • NEW! Blog
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Download Zone
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop

logo

Header Banner

Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
      • Guidelines for Kleefstra Syndrome (2026)
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • Latest News
    • NEW! Blog
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Download Zone
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop

Author: hb-ks-admin

Home›Author: hb-ks-admin
  • All Events
    By hb-ks-admin
    18 January 2026
    941
    0

    Blog! Reducing Mealtime Stress

    One Simple Strategy That Can Reduce Mealtime Stress Gentle ideas to support families living with Kleefstra Syndrome Mealtimes can be one of the most challenging parts ...
    Read More
  • All Events
    By hb-ks-admin
    18 January 2026
    967
    0

    Blog! Tracking Sleep

    Why Tracking Sleep Patterns Can Help Families Living with Kleefstra Syndrome And how to get started… Sleep challenges are something many families affected by Kleefstra Syndrome ...
    Read More
  • christmas jumper day
    All Events
    By hb-ks-admin
    15 November 2025
    939
    0

    KS Christmas Jumper Day 2025

    Kleefstra Syndrome UK Christmas Jumper Day – 17th December Wear a jumper. Raise awareness. Support families. Join us on the 17th December for our first ever ...
    Read More
  • Uncategorized
    By hb-ks-admin
    14 October 2025
    793
    0

    4th October 2026 – Family Get-Together

    Families Come Together in Sheffield for a Special KSUK Gathering   On Saturday 4th October, families from across the country came together in Sheffield for a ...
    Read More
  • Uncategorized
    By hb-ks-admin
    10 October 2025
    868
    0

    In Loving Memory of Mr Solomon

    In Loving Memory of Mr Sylvester Solomon We are deeply saddened by the passing of Mr Sylvester Solomon, a much-loved father, father-in-law, grandfather, and friend. His ...
    Read More
  • Awareness Days
    All Events
    By hb-ks-admin
    8 September 2025
    12594
    0

    Awareness Day 2025

    Kleefstra Syndrome Awareness Day Every year on 17th September, the global Kleefstra Syndrome (KS) community comes together to raise awareness, share stories, and celebrate our amazing ...
    Read More
  • Donate
    Uncategorized
    By hb-ks-admin
    14 July 2025
    845
    0

    Donate

    Make a Donation Every donation helps make life a little easier for families living with Kleefstra Syndrome. We’re a small, but determined charity working to support ...
    Read More
  • All EventsUK Conferences
    By hb-ks-admin
    7 July 2025
    816
    0

    Kleefstra Syndrome UK Family Conference 2026

    Join us for an Inspiring and Supportive Weekend – 4th July 2026 We’re excited to announce that our next Kleefstra Syndrome UK Conference will take place ...
    Read More
  • Piggybank
    Front Page
    By hb-ks-admin
    4 July 2025
    291
    0

    Fundraising For Conference 2026

    Fundraise your way to the Family Conference in 2026! Want to join us in July 2026 at the Kleefstra Syndrome UK Family Conference but worried about ...
    Read More
  • Online Fundraising Toolkit
    Awareness
    By hb-ks-admin
    4 July 2025
    231
    0

    Fundraising Toolkit

    Empowering your Fundraising Efforts Welcome to the Kleefstra Syndrome Online Fundraising Toolkit! Whether you’re hosting a cake sale, running a park run, or raising awareness online, ...
    Read More
1 2

SUPPORT US

Donate via JustGiving

Follow Us

Facebook
Instagram
LinkedIn
© Kleefstrasyndrome.org 2025. Registered charity No.01208059