Kleefstra syndrome

Top Menu

  • 2024 Conference Form
  • About Dr. Kleefstra
  • Anna Gibbs
  • Barbara Roberts
  • Basket
  • Call-back Service
  • Cerebra Pilot Study
  • Checkout
  • Conference 2018 Reserve list request
  • Contact Us
  • Courtney Helliwell
  • Downloads
  • Facial Phenotypes
  • Future Events
  • GENIDA Digital Registry
  • Hannah Banfield
  • Home
  • Kate Palmer
  • Kleefstra syndrome and KMT2C
  • Living with Kleefstra syndrome
  • Logo Download
  • Meet the Team
  • Mission Statement
  • My account
  • Order Confirmation
  • Our Policies
    • Advertising Policy
    • Funding Sources
    • Medical Policy
    • Privacy Policy
    • Terms & Conditions
  • Partners
  • Past Events
  • Research Hub
  • Resources
  • Shop
  • Sign up
  • Sleep Problems and Regression
  • Support Us
  • Thank you!
  • USA Donation
  • Useful Links
  • Virtual Makaton Feedback Form
  • Virtual Makaton Session Booking Form
  • Virtual Music Therapy Session
  • Virtual Music Therapy Session Feedback
  • Vito Berzanskis
  • Wendy Hocking
  • What is Kleefstra syndrome?

Main Menu

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • News and Resources
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Logo Downloads
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop

logo

Header Banner

Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • News and Resources
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Logo Downloads
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop
All Events
Home›Front Page›Support›All Events›It Takes a Village – Life with Kleefstra Syndrome

It Takes a Village – Life with Kleefstra Syndrome

By mousem
24th September 2021
1478
0

Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time).

This event will feature Julie Goff, a thriving young adult living with KS. Julie joins us to further elaborate on the discussion held this past weekend at IDefine’s Rise Above event. If you attended Rise Above, you know this conversation is not to be missed!

If you have questions that you would like Julie to answer, please submit these ahead of time to unlock@idefine.org.

Don’t forget to register for the event here to get your Zoom invite.

Other It Takes A Village events, will take place fortnightly, on alternative Saturdays and Sundays. These events will be advertised on our website and Facebook page Kleefstra Syndrome Community. If you have any special requests for sessions, you are welcome to send in your ideas via email to info@kleefstrasyndrome.org.

SUPPORT US

Donate via JustGiving

Follow Us

Facebook
Twitter
© Kleefstrasyndrome.org 2025. Registered charity No.01208059