Join Us for an Inspiring and Supportive Weekend – 4th July 2026

We’re excited to announce that our next Kleefstra Syndrome UK Conference will take place at the Wychwood Park Hotel near Crewe on Saturday 4th July 2026! 2024’s Family Conference was so well hosted by the team t the Wychwood that we had no hesitations in booking again for 2026.

This special event brings together families and individuals affected by Kleefstra Syndrome, carers, healthcare professionals, researchers, and supporters from across the UK and beyond.

Whether you’ve got a family member who is newly diagnosed or have been part of the KS community for years, the conference is a chance to connect, learn, and feel supported….TOGETHER.

What to Expect

• Expert speakers sharing the latest research and clinical updates
• Workshops and discussion groups for parents and carers
• Opportunities to meet and ask questions
• Family-friendly activities and supervised children’s sessions
• Time to connect with others who understand life with KS

We’re currently finalising the programme, speakers and full agenda so please bear with us — full details, including how to register and the cost, will be shared soon.

Fundraise for your Conference Place!

We’re all feeling the squeeze at the moment so one way to make sure you don’t miss out on next year’s Conference could be to fundraise for you and your family to come along. Take a look at our new fundraising pages for some ideas and inspiration!

For now….Save the Date!

We’d love to see as many KS families and supporters as possible at next year’s conference. If you’d like to be the first to hear when registration opens, please keep an eye on this page and (if you’re not already), make sure you follow all of our social media channels.

In the meantime, if you have any questions or suggestions, feel free to contact us at info@kleefstrasyndrome.org