‘BEOND’ is a pioneering study with our partners at the Cerebra Network for Neurodevelopmental Disorders, which aims to understand more about behaviour, wellbeing, emotion, cognition, sleep and health in Kleefstra syndrome.

Parents and caregivers of children and adults with Kleefstra syndrome are asked to take part in a survey asking about different aspects of living with KS. The study welcomes families of children and adults with Kleefstra both in the UK and internationally. Families who complete the survey will receive individualised feedback reports to put that information back into your hands. The survey can be completed online or a paper copy can be requested. You can choose either option following the link below.

Take part now: https://www.cerebranetwork.com/beond-kleefstra

Thank you for your support for this important Kleefstra syndrome research!