September 17th Kleefstra syndrome Awareness Day Kleefstra Syndrome awareness day is celebrated throughout the Ks community on 17th September. This is because the majority of Ks ...

The weekend of 17th/18th September saw an informal get together of Kleefstra families in Bournemouth, UK.  The weekend provided a great opportunity meet, catch up with ...

In August 2015 we hosted our second conference in Coventry, UK.  Once again we were fully booked with 37 families attending from around the world to learn ...

After the successful Kleefstra study weekend organised by Unique back in 2010, on the weekend of 9th-11th August 2013 we held our first Ks Conference here ...