We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially
been granted Charity Registration status with the UK Charity Commission! This milestone is not
just a step forward for us, but a monumental victory for our entire Kleefstra syndrome family!

As individuals and families intimately familiar with the challenges of Kleefstra syndrome, you
understand the importance of every small victory. Today, we celebrate not just the hurdles we’ve
overcome, but the resilience, hope, and bond that defines our community.

This Charity Registration status symbolises our unwavering commitment to making a difference in the
lives of those affected by Kleefstra syndrome. It’s a recognition of our shared dedication,
perseverance, and belief in brighter tomorrows.

But this is just the beginning of our journey together. With this official recognition, we are now
positioned to pursue further funding opportunities that will enable us to expand our support for all
those living with Kleefstra syndrome.

Your narratives, your strength and your unwavering support have brought us to this moment, and for
that, we are endlessly grateful. Together, we have the power to create real change and make a lasting
impact in the lives of individuals and families affected by Kleefstra syndrome.

Join us in celebrating this monumental achievement by spreading the word, sharing your stories, and
continuing to stand together as a beacon of hope for the Kleefstra syndrome community.

Registered Charity number: 1208059