Kleefstra syndrome

Top Menu

  • 2024 Conference Form
  • About Dr. Kleefstra
  • Anna Gibbs
  • Barbara Roberts
  • Basket
  • Call-back Service
  • Cerebra Pilot Study
  • Checkout
  • Conference 2018 Reserve list request
  • Contact Us
  • Courtney Helliwell
  • Downloads
  • Facial Phenotypes
  • Future Events
  • GENIDA Digital Registry
  • Hannah Banfield
  • Home
  • Kate Palmer
  • Kleefstra syndrome and KMT2C
  • Living with Kleefstra syndrome
  • Logo Download
  • Meet the Team
  • Mission Statement
  • My account
  • Order Confirmation
  • Our Policies
    • Advertising Policy
    • Funding Sources
    • Medical Policy
    • Privacy Policy
    • Terms & Conditions
  • Partners
  • Past Events
  • Research Hub
  • Resources
  • Shop
  • Sign up
  • Sleep Problems and Regression
  • Support Us
  • Thank you!
  • USA Donation
  • Useful Links
  • Virtual Makaton Feedback Form
  • Virtual Makaton Session Booking Form
  • Virtual Music Therapy Session
  • Virtual Music Therapy Session Feedback
  • Vito Berzanskis
  • Wendy Hocking
  • What is Kleefstra syndrome?

Main Menu

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • News and Resources
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Logo Downloads
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop

logo

Header Banner

Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
    • Living with Kleefstra syndrome
    • Research Hub
      • KS Research & Studies
      • Sleep Problems and Regression
    • Facial Phenotypes
    • Kleefstra syndrome and KMT2C
    • About Dr. Kleefstra
  • Support
    • Awareness Days
      • Awareness Day 2025
      • Awareness Day 2024
      • Awareness Day 2018
      • Awareness Day 2017
    • Call-back Service
    • Donate
    • Fundraising
      • Easyfundraising
      • Fundraising Ideas
      • Fundraising Hints and Tips
      • Fundraising For Conference 2026
      • Fundraising Toolkit
    • GENIDA Digital Registry
    • News and Resources
    • Useful Links
  • About Us
    • Mission Statement
    • Support Us
    • Partners
    • Our Policies
    • Meet the Team
    • Logo Downloads
    • Contact Us
  • Events
    • UK Conferences
    • All Events
  • Sign Up
  • Online Shop
News and Resources
Home›Front Page›Support›News and Resources›Vacant position – IT/web manager

Vacant position – IT/web manager

By mousem
29th November 2023
2181
0

Join our team

Join our team of volunteers

We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our small charity, and join a committed team ensuring the effective administration and running of the organisation.

You’ll be responsible for managing content and maintaining our WordPress website, and hosting, mailbox administration, experience of IT/web admin is needed for the role as well as a desire to make a difference to families and individuals living with Kleefstra syndrome.

The role will require around 4-6 hours per month and a commitment to be present and actively engaged with the governance and decision making at our Trustee Zoom meetings and at our AGM, providing ad-hoc support and input as needed. This is a voluntary role and you must reside in the UK.

Please email info@kleefstrasyndrome.org in the first instance for an informal conversation with our Chair, Wendy Hocking.

SUPPORT US

Donate via JustGiving

Follow Us

Facebook
Twitter
© Kleefstrasyndrome.org 2025. Registered charity No.01208059