We were recently contacted by The Sandcastle Trust, highlighting the services they can provide to rare families just like us! Their mission is to reduce inequalities ...

Looking for the perfect stocking filler? Spread some Christmas cheer and support a great cause with our Kleefstra Syndrome UK branded gifts! What branded stocking fillers ...

Saturday 9th November, 6pm – 7pm (GMT) Let’s get prepared for Christmas and come together with other Kleefstra families to talk all things Christmas. For some ...

We’re thrilled to share that the global Kleefstra Syndrome map is now available in multiple languages, thanks to the incredible work of Haluk, a dedicated parent ...

We’re excited to announce a special offer with Easyfundraising! You can support Kleefstra Syndrome UK every time you shop online – at no extra cost to ...

Background information about genetics A person’s genotype is their unique sequence of DNA. More specifically, this term is used to refer to the two forms a ...

The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered a unique ...

Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check out our ...

We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK Charity Commission! ...

Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to identify and ...