Author: mousem
Vacant position – IT/web manager
Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our small charity, ...Kleefstra Syndrome UK unveils new identity in line with new charity status
Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During our Annual ...Midlands Family Gathering
You are warmly invited to a Midlands family gathering at Twycross Zoo in Tamworth, Leicestershire, on Sunday, September 24th, starting at 10:00 AM. This special event ...September meet-up in the South
***UPDATE: This event is postponed due to low attendance levels and exhibition closures at the museum – we are looking to rearrange the meet-up to later ...Kleefstrasyndrome.org AGM 2023
Our forthcoming AGM will take place on Sunday 23rd July 2023 at 8pm (BST) via Zoom and our members are invited to attend. At the meeting, ...Awareness Day 2024
September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ...Behavioural and Emotional Outcomes in Neurodevelopmental Disorders (BEOND) and Kleefstra Syndrome – Take Part Now!
‘BEOND’ is a pioneering study with our partners at the Cerebra Network for Neurodevelopmental Disorders, which aims to understand more about behaviour, wellbeing, emotion, cognition, sleep ...Kleefstra Syndrome Scientific Conference 2023
Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work The Kleefstra Syndrome Scientific Conference 2023, organised by iDefine Europe, will ...Tips in 20 – SEND Behaviour Support event
Charlie Beswick presented Parent Power to our Kleefstra community back in August 2022, as part of our ‘It Takes a Village’ virtual program. You now have ...Let’s talk about sleep!
The next It Takes a Village event is a virtual coffee afternoon all about sleep, held on Sunday 26th March at 4pm BST (GMT+1). Join Mike ...