Kleefstra syndrome

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Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
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      • KS Research & Studies
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Active Research & Studies

Home›Front Page›Support›Category: "Active Research & Studies"
  • Active Research & Studies
    By mousem
    11 March 2024
    725
    0

    Take part in research: The Checklist Project

    Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to identify and ...
    Read More
  • KS Sleep Study
    Active Research & StudiesNews and Resources
    By mousem
    29 December 2022
    1283
    0

    Sleep study on Kleefstra Syndrome

    Little is known about sleep patterns observed in individuals with Kleefstra syndrome, but we know from listening to the community that sleep has a significant impact ...
    Read More
  • Active Research & StudiesNews and Resources
    By mousem
    16 July 2021
    2521
    0

    Take Part Now – Radboud University Medical Center Kleefstra Syndrome Survey

    At the Radboudumc in Nijmegen we are constantly collecting data from people with Kleefstra syndrome, in order to learn more about this rare disorder. Since there ...
    Read More

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