4th July 2025
2026 Family Conference
Join Us for an Inspiring and Supportive Weekend – 4th July 2026. We’re excited to announce that our next Kleefstra Syndrome UK…
26th Feb 2025
The Sandcastle Trust
We were recently contacted by The Sandcastle Trust, highlighting the services they can provide to rare families just like us…
4th Dec 2024
Stocking Fillers
Looking for the perfect stocking filler? Spread some Christmas cheer and support a great cause with our Kleefstra Syndrome…
9th Oct 2024
Are you on the Map?
We’re thrilled to share that the global Kleefstra Syndrome map is now available in multiple languages, thanks to the incredible work of…
2nd Oct 2024
Easyfundraising
We’re excited to announce a special offer with Easyfundraising! You can support Kleefstra Syndrome UK every time you shop online…
10th Aug 2024
Recent Publications
Background information about genetics A person’s genotype is their unique sequence of DNA. More specifically…
7th Aug 2024
2024 Family Conference
The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend…
26th Jun 2024
KS Merch Available
Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check out our amazing…
8th May 2024
KSUK Now Registered
We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the..
In other news…
Click here to read previous news stories from us here at Kleefstra Syndrome UK