On Sale! The Stronger Together Kleefstra Syndrome UK Family Conference, is being held at the Wychwood Park Hotel Cheshire on 12th – 14th July 2024. Book ...

The Kleefstra syndrome speech and language study Expanding the phenotyping of Kleefstra syndrome: speech, language and cognition in 103 individuals has been published in the Journal ...

Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our small charity, ...

Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During our Annual ...

You are warmly invited to a Midlands family gathering at Twycross Zoo in Tamworth, Leicestershire, on Sunday, September 24th, starting at 10:00 AM. This special event ...

***UPDATE: This event is postponed due to low attendance levels and exhibition closures at the museum – we are looking to rearrange the meet-up to later ...

Our forthcoming AGM will take place on Sunday 23rd July 2023 at 8pm (BST) via Zoom and our members are invited to attend. At the meeting, ...

September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ...

‘BEOND’ is a pioneering study with our partners at the Cerebra Network for Neurodevelopmental Disorders, which aims to understand more about behaviour, wellbeing, emotion, cognition, sleep ...

Moving towards the uptake and use of Artificial Intelligence (AI) in research and clinical work The Kleefstra Syndrome Scientific Conference 2023, organised by iDefine Europe, will ...