Author: mousem
The South Social Summer Meetup – 6th August
Bookings are now open for our KS families social gathering for families in the South of England and the surrounding areas! The gathering will be at ...The Impact of Rare Genetic Disorders on Family Functioning
Karlijn Vermeulen (Pediatric psychiatrist and clinical researcher at Radboud UMC in Nijmegen) recently published an article about the enhanced levels of stress that parents with a ...It Takes a Village Singing Hands session
For the next “It Takes a Village” event, we welcome Singing Hands. Join us on Sunday 8th May at 4:30pm for a live multisensory session. Be ...Virtual Yoga Class
Join KleefstraSyndrome.org for a virtual yoga class! We have the privilege of hosting the talented Sarah Raspin, who specialises in yoga for children and young adults ...Kleefstrasyndrome.org Virtual Coffee Afternoon
Saturday 12th March 2022, 4pm GMT Come and join us on Saturday 12th March for our virtual coffee afternoon (which will be run from the UK) ...It Takes a Village – Life with Kleefstra Syndrome
Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time). This event will feature Julie Goff, ...It Takes a Village Music Therapy session
Our next event in ‘It Takes a Village’, is a Music Therapy session set up for Saturday 11th September at 4pm GMT, with Cindy Jo Morison, ...An Introduction to Sensory Processing Differences Zoom Session
It Takes A Village is a new program of useful, interesting, and fun events for families, carers and children diagnosed with Kleefstra Syndrome and other rare ...Take Part Now – Radboud University Medical Center Kleefstra Syndrome Survey
At the Radboudumc in Nijmegen we are constantly collecting data from people with Kleefstra syndrome, in order to learn more about this rare disorder. Since there ...PubMed – List of published KS research
PubMed comprises more than 26 million citations for biomedical literature from MEDLINE, life science journals, and online books. This is a regularly updated list of Ks ...
