All Events
It Takes a Village – Life with Kleefstra Syndrome
Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time). This event will feature Julie Goff, ...It Takes a Village Music Therapy session
Our next event in ‘It Takes a Village’, is a Music Therapy session set up for Saturday 11th September at 4pm GMT, with Cindy Jo Morison, ...An Introduction to Sensory Processing Differences Zoom Session
It Takes A Village is a new program of useful, interesting, and fun events for families, carers and children diagnosed with Kleefstra Syndrome and other rare ...Beaulieu – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ...Eureka! – 14th Sept 2019
We are excited to invite you to a KS family’s social gathering. This will be an informal meeting of families to celebrate KS awareness day, the ...Conference 2018
On the weekend of 10th-12th August 2018 we held our third family conference and social gathering. The weekend was a huge success with 42 families from ...Awareness Day 2018
September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ...Awareness Day 2017
September 17th Kleefstra syndrome Awareness Day Kleefstra Syndrome awareness day is celebrated throughout the Ks community on 17th September. This is because the majority of Ks ...UK Social Meet 2016
The weekend of 17th/18th September saw an informal get together of Kleefstra families in Bournemouth, UK. The weekend provided a great opportunity meet, catch up with ...KS Conference 2015 Summary
In August 2015 we hosted our second conference in Coventry, UK. Once again we were fully booked with 37 families attending from around the world to learn ...
