Kleefstra Syndrome Awareness Day Every year on 17th September, the global Kleefstra Syndrome (KS) community comes together to raise awareness, share stories, and celebrate ...

Join Us for an Inspiring and Supportive Weekend – 4th July 2026 We’re excited to announce that our next Kleefstra Syndrome UK Conference will ...

We were recently contacted by The Sandcastle Trust, highlighting the services they can provide to rare families just like us! Their mission is to ...

Looking for the perfect stocking filler? Spread some Christmas cheer and support a great cause with our Kleefstra Syndrome UK branded gifts! What branded ...

Saturday 9th November, 6pm – 7pm (GMT) Let’s get prepared for Christmas and come together with other Kleefstra families to talk all things Christmas. ...

We’re thrilled to share that the global Kleefstra Syndrome map is now available in multiple languages, thanks to the incredible work of Haluk, a ...

We’re excited to announce a special offer with Easyfundraising! You can support Kleefstra Syndrome UK every time you shop online – at no extra ...

Background information about genetics A person’s genotype is their unique sequence of DNA. More specifically, this term is used to refer to the two ...

The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered ...

Have you seen our NEW! Online Shop? What are you waiting for? Simply navigate to it using the Online Shop link above and check ...