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Kleefstra syndrome

  • About Kleefstra Syndrome
    • What is Kleefstra syndrome?
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Support

Home›Front Page›Category: "Support" (Page 4)
  • All Events

    Virtual Resilience and Wellbeing Session

    By mousem
    8th July 2022
      Tuesday 19th July, 7 – 8:30pm Hosted via Zoom Join Kleefstrasyndrome.org for the next in our “It Takes a Village” series for a ...
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  • The family with Carrie
    News and Resources

    Congratulations and thank you to John and Mike for their extremely generous donation!

    By mousem
    8th July 2022
    Kleefstra Syndrome recently received its largest ever single donation. John and Mike, a couple who had been living together for many years, finally decided ...
    Read More
  • Beaulieu
    All Events

    The South Social Summer Meetup – 6th August

    By mousem
    6th July 2022
    Bookings are now open for our KS families social gathering for families in the South of England and the surrounding areas! The gathering will ...
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  • Karlijn Vermeulen
    KS Research & Studies

    The Impact of Rare Genetic Disorders on Family Functioning

    By mousem
    19th June 2022
    Karlijn Vermeulen (Pediatric psychiatrist and clinical researcher at Radboud UMC in Nijmegen) recently published an article about the enhanced levels of stress that parents ...
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  • All Events

    It Takes a Village Singing Hands session

    By mousem
    19th April 2022
    For the next “It Takes a Village” event, we welcome Singing Hands. Join us on Sunday 8th May at 4:30pm for a live multisensory ...
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  • All Events

    Virtual Yoga Class

    By mousem
    22nd March 2022
    Join KleefstraSyndrome.org for a virtual yoga class! We have the privilege of hosting the talented Sarah Raspin, who specialises in yoga for children and ...
    Read More
  • Kleefstra syndrome coffee morning
    All Events

    Kleefstrasyndrome.org Virtual Coffee Afternoon

    By mousem
    14th February 2022
    Saturday 12th March 2022, 4pm GMT Come and join us on Saturday 12th March for our virtual coffee afternoon (which will be run from ...
    Read More
  • All Events

    It Takes a Village – Life with Kleefstra Syndrome

    By mousem
    24th September 2021
    Our next event in this joint collaboration with KleefstraSyndrome.org and IDefine.org, is this Sunday, September 26th, at 4pm (UK time). This event will feature ...
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  • It takes a village image
    All Events

    It Takes a Village Music Therapy session

    By mousem
    7th September 2021
    Our next event in ‘It Takes a Village’, is a Music Therapy session set up for Saturday 11th September at 4pm GMT, with Cindy ...
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  • It takes a village image
    All Events

    An Introduction to Sensory Processing Differences Zoom Session

    By mousem
    4th August 2021
    It Takes A Village is a new program of useful, interesting, and fun events for families, carers and children diagnosed with Kleefstra Syndrome and ...
    Read More
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