Kleefstra Syndrome Awareness Day Every year on 17th September, the global Kleefstra Syndrome (KS) community comes together to raise awareness, share stories, and celebrate our amazing ...

Join Us for an Inspiring and Supportive Weekend – 4th July 2026 We’re excited to announce that our next Kleefstra Syndrome UK Conference will take place ...

Saturday 9th November, 6pm – 7pm (GMT) Let’s get prepared for Christmas and come together with other Kleefstra families to talk all things Christmas. For some ...

The Stronger Together Kleefstra Syndrome UK Family Conference 2024 was held at Wychwood Park Hotel, Crewe, Cheshire on 13th July 2024. The weekend offered a unique ...

On Sale! The Stronger Together Kleefstra Syndrome UK Family Conference, is being held at the Wychwood Park Hotel Cheshire on 12th – 14th July 2024. Book ...

You are warmly invited to a Midlands family gathering at Twycross Zoo in Tamworth, Leicestershire, on Sunday, September 24th, starting at 10:00 AM. This special event ...

***UPDATE: This event is postponed due to low attendance levels and exhibition closures at the museum – we are looking to rearrange the meet-up to later ...

Our forthcoming AGM will take place on Sunday 23rd July 2023 at 8pm (BST) via Zoom and our members are invited to attend. At the meeting, ...

September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority of individuals ...

Charlie Beswick presented Parent Power to our Kleefstra community back in August 2022, as part of our ‘It Takes a Village’ virtual program. You now have ...