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Kleefstra Syndrome UK is now a Registered Charity
We are overjoyed to share with you the incredible news that Kleefstra Syndrome UK has officially been granted Charity Registration status with the UK ...Take part in research: The Checklist Project
Does your child have a moderate to profound learning disability? Our friends at The Cerebra Network for Neurodevelopmental Disorders have developed a checklist to ...Stronger Together Kleefstra Syndrome UK Family Conference 2024 – Prices Reduced!
On Sale! The Stronger Together Kleefstra Syndrome UK Family Conference, is being held at the Wychwood Park Hotel Cheshire on 12th – 14th July ...Kleefstra syndrome: speech and language study published!
The Kleefstra syndrome speech and language study Expanding the phenotyping of Kleefstra syndrome: speech, language and cognition in 103 individuals has been published in ...Vacant position – IT/web manager
Join our team of volunteers We are currently seeking an IT/web manager to join our Board of Trustees to manage the website for our ...Kleefstra Syndrome UK unveils new identity in line with new charity status
Our charity has outgrown its unincorporated charitable status and now requires transformation into an Incorporated Charitable Organisation registered with the UK’s Charity Commission. During ...Midlands Family Gathering
You are warmly invited to a Midlands family gathering at Twycross Zoo in Tamworth, Leicestershire, on Sunday, September 24th, starting at 10:00 AM. This ...September meet-up in the South
***UPDATE: This event is postponed due to low attendance levels and exhibition closures at the museum – we are looking to rearrange the meet-up ...Kleefstrasyndrome.org AGM 2023
Our forthcoming AGM will take place on Sunday 23rd July 2023 at 8pm (BST) via Zoom and our members are invited to attend. At ...Awareness Day 2024
September 17th Kleefstra syndrome Awareness Day Kleefstra syndrome awareness day is celebrated throughout the KS community on 17th September. This is because the majority ...
